By Hattie Gladwell
It’s hard enough living with either Crohn’s Disease or Ulcerated Colitis as it is, without unnecessary comments from people who don’t understand.
Both diseases are forms of Inflammatory Bowel Disease (IBD) which are both incurable and can result in major surgery.
The worst thing about both diseases is that you may not be able to tell a sufferer by the odd glance. And therefore a lot of the effects are unknown to anyone who has not experienced the same symptoms.
And sometimes those who do not understand, can be quite unsympathetic.
Here are comments people with Crohn’s disease or ulcerative colitis are tired of hearing:
1. ‘Isn’t it just like a sickness bug?’
If you count a sickness bug as an incurable life time of medication, vomiting, diarrhea, fatigue, weight loss, bad joints etc etc… then yes! So it IS a sickness bug! Duh!
2. ‘Wow, you’ve put on some weight!’
Well it was either get more sick or suck it up on steroids. I took the more painless option, obviously.
3. Or: ‘Do you even eat?’
Sometimes the disease can affect your weight the other way around and you can lose crazy amounts in a short space of time.
4. ‘My friend’s mum’s cousin’s boyfriend has that, they’re cured now’
That’s great, she must feel amazing to be the first person in the world to be cured of IBD. You must tell all of the surgeons that you’ve found the cure they’ve been looking for for years! *Facepalm*.
5. ‘Have you tried aloe vera? It has amazing results and cures IBD’
For some reason, a lot of people have started marketing aloe vera as a cure for IBD. Although I’m sure aloe vera has some fantastic qualities, curing an incurable disease is not one of them.
6. ‘I have IBS though, I know how you feel’
Although IBS can be bad, it’s nothing like IBD. It’s silly to compare a syndrome to a disease. Especially when the disease can result in you having life-changing surgery.
7. ‘You shouldn’t be using the disabled toilets’
This is the worst. Just because you can’t physically see a disability, it doesn’t mean it’s not there.
8. ‘You’re not sick’
Perhaps I’m not being physically sick right now, but my insides are tearing up like crazy.
9.’You went to bed at 10pm… How can you be tired?’
Fatigue is one of the most debilitating symptoms of IBD. It’s not just being “tired”.
10. ‘If you just changed your diet…’
Diet has absolutely nothing to do with IBD. Some of the fittest people have IBD, alongside some who may have an unhealthy diet. It’s just bad luck, I’m afraid. No, really.